A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...
Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.
More often, Caeleb’s pain hums like a low-level alarm. He’s a living testament to resilience, with a will to keep moving that surpasses his hurt. This is the rhythm of his life, and he has learned to ...
Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...
When talking about people with hemophilia, use language that creates understanding, not pity, says columnist. Words matter.
Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...
Unless you walk behind me and see the scar running down my spine, you wouldn’t know I have physical limitations. Admitting them often makes me feel less than. But it’s also a testament to my ...
When caregiving for a spouse, it's important to avoid becoming overprotective of their feelings, says columnist.
Men in South America with severe hemophilia A or B are hit with both direct and indirect costs related to the genetic disease, which also affect quality of life, a new study reports. As much as 99% of ...
The cost of Hemgenix (etranacogene dezaparvovec), a one-time hemophilia B gene therapy, will be covered for patients living in Canada through the country’s public healthcare system. The letter of ...