To our Coke loving (stealing), giggle master, Toy Story super fan, cheeky and funniest boy in town — Happy Birthday. How special are we to have another year on planet earth with you. You’re the sun, the reason our world spins and our greatest love. Thank you for showing me what true love is, smiling when the world is oh so dark, and getting up again after the system has only ever let you down. We love every single thing about you. And we love that nothing ever changes. You’re playing Bear in The
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“Autism isn’t an excuse for this behaviour” No it isn’t… but it’s a reason. It’s a reason for the bites, the bruises, the scratches, the kicks. It’s a reason for holes in walls, broken screens, broken hearts. It’s a reason for us to find life… really fucking hard. We aren’t talking about some calculated, manipulative, evil serial killer here — we are talking about an 18 month old in a 23 year old man’s body. A man who doesn’t know the day of the week, the concept of time or his left to right. A
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Struggling to find who I am as a special needs sibling. I spoke to two close friends yesterday, two friends that told me I should share more about me. That I’m equally as important as my brother, ‘of course people care’. It became deeper than that though. The more we delved into the idea of it, why I felt so uncomfortable sharing my side of Ewen And Me. I came to the realisation, that quite honestly, my anxiety around sharing my side of the story comes from a deep feeling of unworthiness. I don’
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Residential is often related to shame. It’s the hesitation before you let anyone know. The moments pause before they respond, do they think we got it wrong? I think often people believe it’s got to be the parents. “Oh they just couldn’t cope” “They must have just given up” Except they didn’t give up. They fought and fought until the fight showed that all along… it wasn’t them who couldn’t cope, it was their son. And keeping him home became for their benefit, rather than his. We were looking at o
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I’ve never been able to relate to those constantly undermined and belittled by the comment “they don’t look autistic”. I’ve never felt like someone knows better in that sense, or that I’m made to feel less or “reassured” less because we don’t fit the stereotype. Although it’s not a lived experience, it’s one I empathise greatly with. A comment I know all of us as a community would roll our eyes at in unison… But here’s the other side. The one that means instead of that comment, we’re stared at,
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