What is Huntington’s disease? Our HDYV members explain what Huntington’s disease is. We’re here to support you, no matter what stage of Huntington’s disease you’re at. For more information see our website. | Huntington's Disease Association
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What is Huntington’s disease? Our HDYV members explain what Huntington’s disease is. We’re here to support you, no matter what stage of Huntington’s disease you’re at. For
Huntington's Disease Association. . What is Huntington’s disease? Our HDYV members explain what Huntington’s disease is. We’re here to support you, no matter what stage of Huntington’s disease you’re at. For more information see our website.
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Huntington's Disease Association Huntingtons Disease Symptoms
What are the symptoms of Huntington's disease? #HuntingtonsDisease #Huntingtons #letstalkhuntingtons | Huntington's Disease Association
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What are the symptoms of Huntington's disease? #HuntingtonsDisease #Huntingtons #letstalkhuntingtons | Huntington's Disease Association
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Do you know what Huntington's Disease is? Marie explains more about Huntington's Disease, the symptoms, and what it's like caring for someone with Huntington's Disease. If you would like more information, and support, head over to our website: https://bda.org.uk/what-is-huntingtons-disease/ | British Deaf Association
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Do you know what Huntington's Disease is? Marie explains more about Huntington's Disease, the symptoms, and what it's like caring for someone with Huntington's Disease. If you would like more information, and support, head over to our website: https://bda.org.uk/what-is-huntingtons-disease/ | British Deaf Association
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Huntington's disease
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What does a Huntington’s Disease Association Adviser do? Our advisers are there for people and families at every stage of Huntington’s disease. They listen, offer guidance, help navigate services, and make sure no one feels alone. Hear directly from Dawn, one of our amazing advisers, as she shares what her role really looks like and why this support matters so much to families across England and Wales 💚 Whether you are newly diagnosed, living at risk, supporting a loved one, or working professi
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What does a Huntington’s Disease Association Adviser do? Our advisers are there for people and families at every stage of Huntington’s disease. They listen, offer guidance, help navigate services, and make sure no one feels alone. Hear directly from Dawn, one of our amazing advisers, as she shares what her role really looks like and why this support matters so much to families across England and Wales 💚 Whether you are newly diagnosed, living at risk, supporting a loved one, or working professi
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As part of our Behind the Gene campaign for Huntington’s Disease Awareness Month, Lauren shares her personal connection to Huntington’s disease. In this powerful three-part video series, she talks about what she wishes more people understood and how people can get involved Watch now and help us raise awareness. You can get involved here: https://ow.ly/Thco50VPYip #BehindTheGene #HuntingtonsDisease #HDAwareness #HuntingtonsAwarenessMonth #HDAmbassador | Huntington's Disease Association
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As part of our Behind the Gene campaign for Huntington’s Disease Awareness Month, Lauren shares her personal connection to Huntington’s disease. In this powerful three-part video series, she talks about what she wishes more people understood and how people can get involved Watch now and help us raise awareness. You can get involved here: https://ow.ly/Thco50VPYip #BehindTheGene #HuntingtonsDisease #HDAwareness #HuntingtonsAwarenessMonth #HDAmbassador | Huntington's Disease Association
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What is Huntington's disease?
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What is Huntington's disease?
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Huntington's Disease Association Huntingtons Disease Treatment
Huntington’s gene treatment a ‘win for everyone’ says local family facing disease
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Huntington’s gene treatment a ‘win for everyone’ says local family facing disease
MSNKXAN Austin
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Huntington’s Disease | Programs & Pipeline
Huntington’s Disease | Programs & Pipeline
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Are you a young person facing Huntington’s disease? Seeking a supportive circle that truly understands? Dive into HD Youth Voice! Our peer support calls, led by fellow youth affected by Huntingtons disease, offers a safe space every two months to connect, chat, and simply be yourself. Join us by clicking the link in our bio | Huntington's Disease Association
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Are you a young person facing Huntington’s disease? Seeking a supportive circle that truly understands? Dive into HD Youth Voice! Our peer support calls, led by fellow youth affected by Huntingtons disease, offers a safe space every two months to connect, chat, and simply be yourself. Join us by clicking the link in our bio | Huntington's Disease Association
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913 viewsMay 20, 2024
What does a Huntington’s Disease Association Adviser do? Our advisers are there for people and families at every stage of Huntington’s disease. They listen, offer guidance, help navigate services, and make sure no one feels alone. Hear directly from Dawn, one of our amazing advisers, as she shares what her role really looks like and why this support matters so much to families across England and Wales 💚 Whether you are newly diagnosed, living at risk, supporting a loved one, or working professi
0:51
What does a Huntington’s Disease Association Adviser do? Our advisers are there for people and families at every stage of Huntington’s disease. They listen, offer guidance, help navigate services, and make sure no one feels alone. Hear directly from Dawn, one of our amazing advisers, as she shares what her role really looks like and why this support matters so much to families across England and Wales 💚 Whether you are newly diagnosed, living at risk, supporting a loved one, or working professi
1.2K views4 months ago
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As part of our Behind the Gene campaign for Huntington’s Disease Awareness Month, Lauren shares her personal connection to Huntington’s disease. In this powerful three-part video series, she talks about what she wishes more people understood and how people can get involved Watch now and help us raise awareness. You can get involved here: https://ow.ly/Thco50VPYip #BehindTheGene #HuntingtonsDisease #HDAwareness #HuntingtonsAwarenessMonth #HDAmbassador | Huntington's Disease Association
1:23
As part of our Behind the Gene campaign for Huntington’s Disease Awareness Month, Lauren shares her personal connection to Huntington’s disease. In this powerful three-part video series, she talks about what she wishes more people understood and how people can get involved Watch now and help us raise awareness. You can get involved here: https://ow.ly/Thco50VPYip #BehindTheGene #HuntingtonsDisease #HDAwareness #HuntingtonsAwarenessMonth #HDAmbassador | Huntington's Disease Association
4.6K viewsMay 10, 2025
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What is Huntington's disease?
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What is Huntington's disease?
40.4K viewsOct 15, 2022
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What do you hear about Huntington’s disease that isn’t true? There are still so many myths and misunderstandings about Huntington’s disease, and they can be hurtful, misleading, and isolating for people and families living with it. We’re on a mission to change myths into facts and improve understanding of what Huntington’s really is and how it affects everyday life. If you’ve heard something about Huntington’s and wondered whether it’s true, you’re not alone. Education starts with asking questio
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What do you hear about Huntington’s disease that isn’t true? There are still so many myths and misunderstandings about Huntington’s disease, and they can be hurtful, misleading, and isolating for people and families living with it. We’re on a mission to change myths into facts and improve understanding of what Huntington’s really is and how it affects everyday life. If you’ve heard something about Huntington’s and wondered whether it’s true, you’re not alone. Education starts with asking questio
5.9K views4 months ago
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Want to know more about how you can get involved this #HuntingtonsDiseaseAwarenessMonth | Huntington's Disease Association
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Want to know more about how you can get involved this #HuntingtonsDiseaseAwarenessMonth | Huntington's Disease Association
802 viewsMay 13, 2024
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What are the symptoms of Huntington's disease? | Huntington's Disease Association
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What are the symptoms of Huntington's disease? | Huntington's Disease Association
3.1K viewsAug 4, 2024
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This May, we are showing the many faces and many lives behind Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. In this video Nikki talks about what she wishes people knew about #HuntingtonsDisease. To find out more about our awareness month and how you can get involved: https://ow.ly/blnM50VWha8 | Huntington's Disease Association
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This May, we are showing the many faces and many lives behind Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. In this video Nikki talks about what she wishes people knew about #HuntingtonsDisease. To find out more about our awareness month and how you can get involved: https://ow.ly/blnM50VWha8 | Huntington's Disease Association
20.1K views1 year ago
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This May, we are showing the many faces and many lives behind Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. Earlier this week Hannah shared part one of her takeover series on what she wishes people knew about Huntington's disease | Huntington's Disease Association
4.9K views11 months ago
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This May, we are showing the many faces and many lives behind Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. A staggering 85% of 150 people asked in a recent survey had to educate a doctor, nurse or healthcare professional about Huntington’s disease. This is just one of the many challenges the Huntington’s community face
2.4K views11 months ago
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This May, we are showing the many faces and many lives behind Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. Joe explains what he wishes people knew in this video. This is a three part video. | Huntington's Disease Association
11.9K views11 months ago
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In this video, you will see the ways in which the Huntington's Disease Association can help you and your family. From the perspective of one of our Specialist Huntington's Disease Advisers, you see how Huntington's can affect a whole family and what methods our SHDA's use to help and support families. In conjunction with the Breaking Down Barriers project, this video helps you learn about outside bodies who can also offer information, support and advice. If you need support and advice on Hunting
5K viewsFeb 27, 2019
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How can Huntington's Disease Association help you
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This May, we are showing the many faces and many lives behind Huntington's disease. Thank you to Kelly for sharing her video on what she wishes people knew about Huntington's disease. Too often, people affected by Huntington's disease find themselves educating the public about their condition. Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. A staggering 85% of 150 people asked in a recent survey had to educate a doctor, nurse or healthcare professional
9.2K views1 year ago
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Chris talks openly about living with Huntington’s disease while continuing to work for as long as he could. He shares the realities of managing symptoms at work and how important it was for him to maintain his independence 💚 With support from the Huntington’s Disease Association, Chris was able to access guidance, advocacy and practical help to navigate employment for as long as possible. His story is a reminder that the right support can make all the difference. 👉 Read more or find support at
6.7K views9 months ago
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Did you know that we provide ‘I have Huntington’s disease’ ID cards that we can personalise with your name and emergency contact details? The card can be kept in your purse or wallet or put in a card holder on a lanyard (not provided). | Huntington's Disease Association
1.6K viewsAug 1, 2024
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About HDSA & Huntington's Disease | Huntington's Disease Society of America
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How has Huntington’s disease positively affected you? Freya talks about the impact that Huntington’s disease has had on her life and how it has positively affected her. If you would like to find out more about our youth service. | Huntington's Disease Association
2.2K views8 months ago
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💚 The harsh reality of Huntington’s disease is that many people, like Chris, will reach a point where they can no longer look after themselves and will need full-time care. Because the condition is rare, too often people move into care homes that do not fully understand how to support them. This can leave families feeling anxious, frustrated, and alone. | Huntington's Disease Association
5.2K views7 months ago
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Help raise awareness for Huntington’s disease with our Huntington’s Disease Association Wristbands! ✨ Available in pink and green—our charity colours ✨ Designed to comfortably fit adult wrists ✨ A simple way to show your support and spark conversations. Every wristband worn helps spread awareness. Get yours today by clicking the link in our comments. | Huntington's Disease Association
496 viewsFeb 22, 2025
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Jen talks about her experience with talking to others about Huntington's disease | Huntington's Disease Association
1.8K viewsJul 16, 2024
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Being at risk of Huntington's disease means that you have a family history of the condition and may carry a genetic mutation associated with it. In her September takeover, Charlotte spoke about what being at risk means and how she didn't understand it at first. | Huntington's Disease Association
1.9K viewsMar 25, 2024
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Millie, aged 24, kindly shared a video about Huntington’s disease. Earlier this week we shared part one. Thank you to Millie for sharing her story | Huntington's Disease Association
4.8K viewsJan 27, 2024
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Next week brings a first for the Huntington’s Disease Association, we’re launching our first co-produced film. Created by HDYV for young people, the group looked at what they needed when first finding out about Huntington’s disease and how to show other young people that they’re not alone. Take a sneak peek at the snippet below The Saltways | Huntington's Disease Association
2.1K viewsMar 8, 2024
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In this powerful video, Iris shares her story about the challenges she faced growing up affected by Huntington’s disease and how early support could have helped her feel less alone. | Huntington's Disease Association
3.4K views11 months ago
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"You are not alone” Our first co-produced film created by our Huntington’s Disease Youth Voice aims to show how young people are affected by Huntington’s disease and remind young people that they are not alone. This incredibly powerful short film educates about how young people are affected by Huntington’s and that the community is there for them. You can watch the full film here: https://loom.ly/vGF49Ro | Huntington's Disease Association
2.7K viewsMar 13, 2024
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Dec 11, 2024
bbc.co.uk
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On the 18 August, Steve was on Rare Disease UK's Instagram stories doing a takeover about Huntington's Disease. He shared ten stories which spoke about his experience with Huntington's disease, going through genetic testing and his family. We're delighted to start sharing those stories over the next ten days. Tune in each day to hear the next part of Steve's story | Huntington's Disease Association
1.7K viewsAug 29, 2023
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How Huntington's disease affects Steve's brother, Mark. Thanks to Steve for taking part in our Instagram takeover with Rare Disease. It's fantastic to be able to raise awareness of Huntington's disease by sharing your stories. | Huntington's Disease Association
1.9K viewsSep 14, 2023
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